Privacy Statement
Dementia Justice Canada is committed to protecting the privacy of our clients and visitors to our website.
Providing our services involves the collection, use and disclosure of some personal information about you. This Privacy Statement outlines the principles and practices we will follow in protecting your personal information. Our privacy commitment includes ensuring the accuracy, confidentiality, and security of your personal information and allowing you to request access to, and correction of, your personal information.
If you do not consent to the collection, use and disclosure of your personal information in accordance with this policy, do not provide us with any personal information. However, certain services can only be provided to you if we receive the required personal information from you. If you choose not to provide us with the required personal information, we may be unable to provide you with those services.
DEFINITIONS
Personal Information – means information about an identifiable individual. Examples of such information include name, date of birth, home address and telephone number, marital status, medical information, employment and education history, and details of your government issued identification. Personal information does not include contact information (described below).
Contact information – means information that would enable an individual to be contacted at a place of business and includes name, position name or title, business telephone number and address, and business email or fax number. Contact information is not covered by this policy.
POLICIES
Collecting Personal Information
Unless the purposes for collecting personal information are obvious and you voluntarily provide your personal information for those purposes, we will communicate the purposes for which personal information is being collected, either orally or in writing, before or at the time of collection.
We will collect personal information that is necessary to fulfill the following purposes:
Consent
To the extent possible, we will obtain consent directly from you to collect, use or disclose your personal information. However, from time to time and with your consent, we may collect your personal information from third parties.
If you provide us with personal information about another individual, you represent that, prior to submitting such information, you have obtained the necessary consent or authorization to permit us to collect, use and disclose such personal information for the purposes set out in this policy or as permitted by law.
We generally do not obtain consent of the individual concerned in the following circumstances:
Consent can be provided orally, in writing, electronically, or through an authorized representative, or it can be implied where the purpose for collecting, using or disclosing the personal information would be considered obvious and you voluntarily provide personal information for that purpose.
Subject to certain exceptions (e.g., the withdrawal of consent would frustrate the performance of a legal obligation), you can withhold or withdraw your consent for Dementia Justice Canada to use your personal information in certain ways. Your decision to withhold or withdraw your consent to certain uses of personal information may restrict our ability to provide a particular service. If so, we will explain the situation to assist you in making the decision.
We may collect, use or disclose personal information without your knowledge or consent when the collection, use or disclosure of personal information is permitted or required by law.
Using and Disclosing Personal Information
We will only use or disclose your personal information where necessary to fulfill the purposes identified at the time of collection or for a purpose reasonably related to those purposes such as:
We will not use or disclose your personal information for any additional purpose unless we obtain consent to do so or such use or disclosure is permitted or required by law.
We will not sell your personal information to other parties.
Retaining Personal Information
If we use your personal information to make a decision that directly affects you, we will retain that personal information for at least one year so that you have a reasonable opportunity to request access to it. Otherwise, we will retain your personal information only as long as necessary to fulfill the identified purposes or a legal or business purpose.
Ensuring Accuracy of Personal Information
We will make reasonable efforts to ensure that your personal information is accurate and complete where it may be used to make a decision about you.
You may request correction to your personal information in order to ensure its accuracy and completeness. A request to correct personal information must be made in writing and provide sufficient detail to identify the personal information and the correction being sought.
If the personal information is demonstrated to be inaccurate or incomplete, we will correct the information as required. If the correction is not made, we will note your correction request in the file.
Securing Personal Information
We are committed to ensuring the security of your personal information in order to protect it from unauthorized access, collection, use, disclosure, copying, modification or disposal or similar risks.
To help protect the privacy of your personal information, we will use appropriate security measures to ensure that your personal information is appropriately protected. Examples of such measures include restricted access to files, using passwords and encryption, and other internal practices appropriate to the sensitivity of the information.
We will use appropriate security measures when destroying your personal information.
We will continually review and update our security policies and controls as technology changes to ensure ongoing personal information security.
Providing You Access to Personal Information
You have a right to access your personal information, subject to exceptions. Examples of such exceptions include information that contains references to other individuals, and information that cannot be disclosed for legal and security reasons.
A request to access personal information must be made in writing and provide sufficient detail to identify the personal information being sought.
We will make the requested information available within 30 business days, or provide written notice of an extension where additional time is required to fulfill the request.
A minimal fee may be charged for providing access to personal information. Where a fee may apply, we will inform you of the cost and request further direction from you on whether we should proceed with the request.
If we refuse your request in full or in part, we will notify you in writing, providing the reasons for refusal and the recourse available to you.
Changes to Privacy Policy
This policy is in effect as of July 17, 2025. From time to time, we may change this policy without any notice or liability to you or any other person. The collection, use and disclosure of your personal information will be governed by the then-current policy. It was last updated August 22, 2025.
Questions and Complaints
You should direct any complaints, concerns or questions regarding Dementia Justice Canada’s compliance in writing to Heather Campbell Pope at [email protected]. If she is unable to resolve the concern, you may also write the provincial information and privacy commissioner.
Providing our services involves the collection, use and disclosure of some personal information about you. This Privacy Statement outlines the principles and practices we will follow in protecting your personal information. Our privacy commitment includes ensuring the accuracy, confidentiality, and security of your personal information and allowing you to request access to, and correction of, your personal information.
If you do not consent to the collection, use and disclosure of your personal information in accordance with this policy, do not provide us with any personal information. However, certain services can only be provided to you if we receive the required personal information from you. If you choose not to provide us with the required personal information, we may be unable to provide you with those services.
DEFINITIONS
Personal Information – means information about an identifiable individual. Examples of such information include name, date of birth, home address and telephone number, marital status, medical information, employment and education history, and details of your government issued identification. Personal information does not include contact information (described below).
Contact information – means information that would enable an individual to be contacted at a place of business and includes name, position name or title, business telephone number and address, and business email or fax number. Contact information is not covered by this policy.
POLICIES
Collecting Personal Information
Unless the purposes for collecting personal information are obvious and you voluntarily provide your personal information for those purposes, we will communicate the purposes for which personal information is being collected, either orally or in writing, before or at the time of collection.
We will collect personal information that is necessary to fulfill the following purposes:
- to comply with client identification and verification obligations;
- to manage client relationships, including whether to establish such a relationship;
- to provide legal and other related services;
- to provide administrative services, such as issuing invoices and processing payments; and
- any other purposes for which you have given your consent.
Consent
To the extent possible, we will obtain consent directly from you to collect, use or disclose your personal information. However, from time to time and with your consent, we may collect your personal information from third parties.
If you provide us with personal information about another individual, you represent that, prior to submitting such information, you have obtained the necessary consent or authorization to permit us to collect, use and disclose such personal information for the purposes set out in this policy or as permitted by law.
We generally do not obtain consent of the individual concerned in the following circumstances:
- if you provide us with personal information about a third person for the purposes of performing our services for you;
- if legal, medical or security reasons make it impossible or impractical to seek consent; and
- when information is being collected for the detection and prevention of fraud or for law enforcement and seeking consent of the individual may defeat the purpose of collecting the information.
Consent can be provided orally, in writing, electronically, or through an authorized representative, or it can be implied where the purpose for collecting, using or disclosing the personal information would be considered obvious and you voluntarily provide personal information for that purpose.
Subject to certain exceptions (e.g., the withdrawal of consent would frustrate the performance of a legal obligation), you can withhold or withdraw your consent for Dementia Justice Canada to use your personal information in certain ways. Your decision to withhold or withdraw your consent to certain uses of personal information may restrict our ability to provide a particular service. If so, we will explain the situation to assist you in making the decision.
We may collect, use or disclose personal information without your knowledge or consent when the collection, use or disclosure of personal information is permitted or required by law.
Using and Disclosing Personal Information
We will only use or disclose your personal information where necessary to fulfill the purposes identified at the time of collection or for a purpose reasonably related to those purposes such as:
- to communicate with you to evaluate and improve our services; and
- to distribute Dementia Justice Canada publications and other communications which we believe may be of interest to you.
We will not use or disclose your personal information for any additional purpose unless we obtain consent to do so or such use or disclosure is permitted or required by law.
We will not sell your personal information to other parties.
Retaining Personal Information
If we use your personal information to make a decision that directly affects you, we will retain that personal information for at least one year so that you have a reasonable opportunity to request access to it. Otherwise, we will retain your personal information only as long as necessary to fulfill the identified purposes or a legal or business purpose.
Ensuring Accuracy of Personal Information
We will make reasonable efforts to ensure that your personal information is accurate and complete where it may be used to make a decision about you.
You may request correction to your personal information in order to ensure its accuracy and completeness. A request to correct personal information must be made in writing and provide sufficient detail to identify the personal information and the correction being sought.
If the personal information is demonstrated to be inaccurate or incomplete, we will correct the information as required. If the correction is not made, we will note your correction request in the file.
Securing Personal Information
We are committed to ensuring the security of your personal information in order to protect it from unauthorized access, collection, use, disclosure, copying, modification or disposal or similar risks.
To help protect the privacy of your personal information, we will use appropriate security measures to ensure that your personal information is appropriately protected. Examples of such measures include restricted access to files, using passwords and encryption, and other internal practices appropriate to the sensitivity of the information.
We will use appropriate security measures when destroying your personal information.
We will continually review and update our security policies and controls as technology changes to ensure ongoing personal information security.
Providing You Access to Personal Information
You have a right to access your personal information, subject to exceptions. Examples of such exceptions include information that contains references to other individuals, and information that cannot be disclosed for legal and security reasons.
A request to access personal information must be made in writing and provide sufficient detail to identify the personal information being sought.
We will make the requested information available within 30 business days, or provide written notice of an extension where additional time is required to fulfill the request.
A minimal fee may be charged for providing access to personal information. Where a fee may apply, we will inform you of the cost and request further direction from you on whether we should proceed with the request.
If we refuse your request in full or in part, we will notify you in writing, providing the reasons for refusal and the recourse available to you.
Changes to Privacy Policy
This policy is in effect as of July 17, 2025. From time to time, we may change this policy without any notice or liability to you or any other person. The collection, use and disclosure of your personal information will be governed by the then-current policy. It was last updated August 22, 2025.
Questions and Complaints
You should direct any complaints, concerns or questions regarding Dementia Justice Canada’s compliance in writing to Heather Campbell Pope at [email protected]. If she is unable to resolve the concern, you may also write the provincial information and privacy commissioner.
